In a realistic portrayal of her health challenges, Celine Dion recounts her battle with Stiff Person Syndrome (SPS) in the Prime Video documentary “I Am: Celine Dion.” This film has quickly become the platform’s most popular documentary, revealing the singer’s vulnerability and resilience as she copes with a serious neurological condition.
Dion was diagnosed with SPS in 2022, a condition that causes severe muscle spasms and rigidity, forcing her to cancel her world tour. The documentary, directed by Irene Taylor and shot by cinematographer Nick Midwig, takes an intimate look at Dion’s journey. One of its most impactful moments includes a 40-minute episode of SPS, which was edited down to just a few minutes for the final cut.
Midwig reflected on the delicate nature of filming these moments, stating, “We both stood back and assessed, like, ‘Are we in the way?'” The filmmakers aimed to respect Dion’s medical needs while authentically capturing her experience.
The documentary transcends traditional celebrity profiles, showcasing Dion in a raw state. Taylor noticed that Dion appeared without makeup, her hair in a basic bun, presenting a true and accurate appearance. Using an ARRI Mini LF camera, typically found in Hollywood productions, adds a cinematic quality to her narrative.
Dion’s emotional response to the film’s ending was profound. “She was crying when the film ended, and she said, ‘Irene, I think this film could help me,'” Taylor shared. For a long time, Dion had kept her illness private, fearing that fans might not understand the seriousness of her condition.
The documentary addresses Dion’s concerns about being misunderstood, particularly her show cancellations. Taylor explained, “She was afraid people would not believe her. She was worried that these cancellations would make it appear that she wasn’t dedicated to her fans.”
The collaboration between Dion and Taylor began unexpectedly during the pandemic, with initial meetings held over Zoom. Producer Leisl Copland played a key role in connecting them, leading to a project that is both deeply personal and widely relatable.
“I Am: Celine Dion” offers more than a look into a celebrity’s life; it tells a powerful story of strength and vulnerability in the face of a challenging medical condition. The documentary has already set records as Prime Video’s most-watched film, indicating that Dion’s openness resonates with audiences worldwide.